Welcome

Hello to all the readers in the world, my name is Harry and I am 47 years old and I have Sticklers Syndrome.

I hear first time readers say “what’s that, and what am I to expect”.

Both are very normal questions , and this is what this site is all about. I hope to help everyone be better informed to what Sticklers Syndrome is, how it impacts on peoples live, the patient, the professional the career and the most importantly the un recognised hero’s the family.

So welome to my journey with Sticklers.

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